About us

Who we are​

Sickle Life, established by Dr Enam Sefakor Bankas in 2013 and incorporated in 2016 as a Non-Governmental Organisation (NGO) has grown into one of Ghana’s leading Sickle Cell advocacy organizations.

With a vision to provide timely and relatable information about Sickle Cell Disease, we are committed to empowering persons affected by this condition and the general public to make informed decisions about it.

Over the years, we have built a strong community of volunteers and healthcare professionals who drive our mission of education, mentorship and support.

Through our projects and programmes, we have made significant strides in reducing stigma and improving health outcomes.

Looking ahead, we aim to establish Sickle Life centers across all regions of Ghana, ensuring equal access to care and support for every individual living with Sickle Cell Disease. Our goal is to continue leading the charge for awareness, advocacy, and comprehensive Sickle Cell care on a national and global scale.

Our Mission

1.Provide education and information about Sickle Cell Disease to the public to empower them to make informed decisions regarding the condition.​

2. Ensure good health and wellbeing of persons living with Sickle Cell Disease, their family and caregivers.

3. Be the foremost Sickle Cell Disease advocacy organisation in Ghana.

Our Vision

1. To provide timely, relatable and reliable information about Sickle Cell Disease to the public through conferences, research, publications, articles, media and social media engagement.​

2. To encourage good health seeking behaviour of persons living with Sickle Cell Disease, their family and caregivers through education, mentorship and capacity building projects of the Sickle LIfe Support Group.

3. To establish Sickle Life centres in all Regions in Ghana to provide social support to persons living with Sickle Cell Disease and coordinate the activities of the organisation in Ghana as well as to partner African and Global Sickle Cell NGOs for global advocacy.

Organogram

  • Advisory Board
    • Managing Director
      • Business and Finance Unit
        - Sponsorship/Funding - Recruitment & Volunteer Mgt - Relationship Management - Cashflow & Fin Controls -Financial Reporting
        • Business & Financial Unit Assist
      • Marketing & Branding
        - Website/Blogging - Data Analytics - Social Media - Public Relations
        • Marketing & Branding Assist
      • Programs
        - Calendar Events - Medical Outreaches - General Outreaches - Ad Hoc Events
        • Programs Assist
      • Support Group
        - Welfare - Internship/Underatudy/Training - Life Skills - Sickle Cell Disease Education
        • Support Group Assist

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